it has been forever, and a day
sine the last post, but things are going well for us. we have been really busy being parents to two (those of you who have more, i have no idea how you do it, and you have my respect) wonderful children...the eldest of which, and whose name this blog spawned from, with her occasional lapses. she is a good big sister, who helps us out by making the run for diapers upstairs, keeping an eye on wills, and making him belly laugh like no one else can.
however, this is all coming with its equally annoying habits and choices. getting her slf out of her booster seat when the car is stopped (but not being able to buckle herself back in, bitting her brothers fingers just to see what happens, poking him in the soft spot when she gets mad at us (because that probably wont upset us anymnore than we already are, and her latest, pouring baby powder all over her room, in her cd player, on her 17 THOUSAND DOLLAR Chest-Therapy Vest and compressor, in our bed, and anywhere she could think. "Why??" you ask... "Because when you sent me to my room i didn't have any toys...i just didn't have any..."
i am sure we will laugh about all of it someday, but for now...we remain delightfully annoyed. thanks for all your prayers. i will try to do a better job of keeping this updated.
love wins.
lane, mindy, lilly, & wills (whose CF test was negative: including being free from even having the gene!!)
Panorama: Letzigrund, Zurich
12 hours ago

2 comments:
Thank You for your site. I showed my 3yr old the video of Lilly in her vest and she was excited that a little girl like her has a vest too. As you can tell I am a mother of a CF child, I also have 2 other family memebers with CF. We all appreciate the awareness that you are spreading. Thank You again. Good Luck to you all.
Just found some of your videos on Youtube. Our (nearly) 2 year old daughter also called Lily has CF.
Was intrigued by the vest you guys have - have never seen or heard of one before.
Really glad that your new addition doesn't have condition. We just had number 2 as well and just found out she's clear as well.
Bring on the cure/healing. We called our 2nd daughter Josie Rafya - Rafya meaning God heals. A statement for her and a promise we believe for our Lily.
Loved you rendition of How Great is our God lol
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